Transcript: Scottish Television’s The Five Thirty Show

By Jen Dodds | March 14th, 2008


The British Deaf Association’s Richard Jones was interviewed on Scottish Televisions’ The Five Thirty Show on Wednesday. You can watch it here (link valid until Tuesday 18th March). Richard uses BSL but there are no subtitles - many thanks to Rachel Belk for transcribing it below:

Male presenter (Stephen): Now, who would choose for their child to be anything less than perfect? Well, a Deaf couple in say they, at least, would like the option. New fertility legislation is set to make it illegal to use embryos with an abnormality like deafness during IVF treatment, but the couple argue that is discrimination.

Female presenter (Debi): They believe they have the right to choose to have a deaf child and want that right to be recognised. Well, joining us in the studio to talk about this controversial topic is medical ethics expert, Professor Hugh McLachlan alongside Richard Jones from the British Deaf Association and the voice you will be hearing is that of interpreter Andrew Dewey. To you, Richard, first of all: Should this couple have the right to have a deaf child?

Richard Jones (via interpreter): Well, this Deaf couple, I believe, should have the right to choose. Obviously, if it’s hearing or deaf, it shouldn’t make any difference and that choice should be made available.

Stephen: Professor, we’ve seen in the past, couples choosing or trying to choose, to determine the sex of the child. This takes it to a whole different level though, doesn’t it?

Prof Hugh McLachlan: Yes, but I think, whether or not people have a right to make that choice, I think it’s morally permissible. I don’t think there’s any child harmed by this. I mean, I think it would be one thing to ‘deafen’ a child who could otherwise hear, but that’s quite different from choosing to have a child who otherwise wouldn’t be born who happens to be deaf.

Stephen: But what would you say to people who say it’s selfish on the part of the parents to want the child to be like them and in their image.

Prof Hugh McLachlan: Well, I don’t know that it’s selfish in the sense that other people’s rights are infringed. Selfishness suggests that, not only do you do what you want to do, but you’re doing something that other people are harmed by. I don’t think that is selfish in this case, no. Self-regarding, but not selfish.

Debi: what would you say to that, Richard?

Richard Jones (via interpreter): Well, for Deaf people, whilst it might be seen as a deficit, we view deafness in a very positive light, in that there is a d/Deaf member of the Welsh Assembly, there are many d/Deaf people that run successful businesses and so, those people, it’s an issue that people won’t allow Deaf people to make their choice.

Debi: So you would like to see, potentially, the law changed?

Richard Jones (via interpreter): Yes. I think, as the professor has said, it’s not infringing upon other people. If deaf people are born deaf, they should be allowed to grow up and to have deaf parents, to allow them to rear them. They’ll have a quality of life and that should be encouraged and many deaf people lead good quality productive lives.

Stephen: You’re an expert in ethics, professor. Where does this stop though, if we carry on down this road?

Prof Hugh McLachlan: I think it stops where we want it to stop! I think slippery slopes are no more slippery slopes than greasy gradients – upward-sloping. We choose where it stops and I think, in this case, I’m disappointed with the decision and I think, in a case like this, they should be permitted to choose.

Debi: Do you think it’s a lifestyle choice, in a way?

Prof Hugh McLachlan: Well, even if it is as well, that doesn’t make it wrong. I don’t think there’s any person’s rights infringed here and I think other choices should be allowed as well. I don’t think choosing, itself, is wrong. Even if other people wouldn’t have chosen on that basis, I don’t think it follows we should make it impermissible to do so.

Stephen (to Richard): Is this debate good from your point of view because one of the things the couple have said is they don’t see deafness as a disadvantage in their lives. It’s not held them back. Is this a good way of looking at deafness and the impact it has on people’s lives? And the way that it can, in fact, let you lead a full and fruitful life?

Richard Jones (via interpreter): Yes. The view of the majority of society often looks at the larger norms of society, which is hearing, whereas the smaller minorities really should be included and not looked at just from that medical viewpoint as if deafness is something that makes them inferior. Deaf people can contribute to society, they should be treated as equals and as citizens.

Debi: Well, this is a debate, I think, which could run and run. So thank you very much to both of you for joining us.

Stephen: Yes, thank you for your time. What do you (viewers) think about this controversial topic? As always, we want to hear your views. Get in touch with us via the addresses that are on your screen (stephen@stv.tv and debi@stv.tv ).

[END]

Posted in Media Campaign, Uncategorized | 3 Comments »

      

Deaf People & Genetics: Media Coverage

By Alison Bryan | March 11th, 2008


Firstly, for those of you in the UK, tomorrow BBC Breakfast will air an interview with the RNID (7.10am) and also Tomato Lichy plus Paula Garfield (8.10am). Dr. Steve Emery will be appearing on BBC Radio 4, The Moral Maze (8.00-8.45pm). Irrespective of where you are located, you should be able to participate in debate online afterwards and we would actively encourage you to do so. We will try and make available media on this blog.

Things have taken a faster pace in the UK, and within the last two days here’s media covering this issue (in response to Clause 14(4)(9), which this campaign is about).

Radio:

BBC Radio 4: Today
BBC Radio 2: The Jeremy Vine Show
BBC Radio 4: Women’s Hour

BBC Online Discussion:

BBC Radio 4: Women’s Hour
BBC Radio 4: Today
BBC Radio 2: The Jeremy Vine Show
BBC Radio 4: The Moral Maze

UK Broadsheet Newspapers:

The Observer: This couple want a deaf child. Should we try to stop them?
The Independent: Dominic Lawson: Of course a deaf couple want a deaf child
The Telegraph: Couple who want deaf child angry at IVF ban
The Guardian: Rebecca Atkinson: My baby, right or wrong
The Times: Choosing a deaf baby is criminal
The Daily Mail: ‘Creating a deaf child IS immoral and no parent should be allowed to choose this for their child’

Newspaper / Media Blogs:

Guardian: Cathy Heffernan, The hearing’s difficulties
The Times: India Knight, “Where pro-choice feminism collides with disability rights”
Times Online: India Knight, More on ‘the right to be deaf’
BBC Ouch: Rebecca Atkinson: When disability becomes illegal: “We can screen abnormalities out before birth, but should we?”

Blogs:

Dr Steve Emery: Eugenics in UK: the debate suddenly takes off and hots up!
Grumpy Old Deafies: Genetics: BBC Radio Transcript Links & BBC lack of impartiality
All The Young Dudes: MEDIA WATCH: A Cacophonous Din of Ignorance & A Sane Voice [More Linx]
All The Young Dudes: Media Watch: A Sane Voice Amidst A Cacophony of Ignorance
All The Young Dudes: Media Watch: Hearing People Still Don’t Get It! No They Don’t!
All The Young Dudes: Media Watch: Hearing People Don’t Get It! Or Do They?
Nothing To Do With Arbroath: This couple want a deaf child. Should we try to stop them?
JivinJehoshaphat: Life Links 3/10/08
Secondhand Smoke: At the Crossroads of Eugenics and Solipsism: Engineering a Culture of Death
Dr Rant: Deafness is a disablity, fuckwit
bioethics.com: This couple want a deaf child. Should we try to stop them?
Earthquake Cove: Should parents be able to choose a deaf baby?
The Human Future: Wanted Another deaf child
The Human Future: Artificial Sperm to be Allowed for Babymaking
19th Floor: Not Worthy
Steve Shickles: This couple want a deaf child. Should we try to stop them?
Futurismic: Ethics and embryology - should deaf parents be allowed to choose a deaf child?
Curiouser and Curiouser: Selecting for deaf children seems crazy to me
Rot Watch: Deaf Babies
Peter Bracken: Is deafness a disability?
Bionic Ear: UK IVF Couple Wants Deaf Child
Mishka Zena: Eugenics Too Close To Home: Tomato Lichy, U.K. Activist
Mishka Zena: Should Deaf Parents Have a Deaf Child?
The Not-Quite-So-Friendly Humanist: Reverse Eugenics
JoJo Moyes: A deaf child - not your right to choose
Mike Gulliver’s Blog: Response to John Humphries
Unenlightened Commentary: Designing Disability
Tory Radio: blind to common sense
Disability Nation: Controversy in the UK
Charles On …. Anything That Comes Along: Props to John Humphries on the deaf issue
Current Awareness: Couple who want deaf child angry at IVF ban - Daily Telegraph

Posted in Uncategorized | 12 Comments »

      

Stop, by Yesenia Ballesteros

By Alison Bryan | February 19th, 2008


By Artist Yesenia Ballesteros, with input from NTID Civil Rights and Deaf People classmates:

Yesenia Ballesteros - Stop

Posted in Uncategorized | No Comments »

      

A question for the 12th April march organisers…

By Jen Dodds | February 15th, 2008


ENGLISH TRANSLATION:

Hello! I’m very happy to see British Deaf people finally taking action and organising a march in London on April 12th. This is great! However, I’d like to clarify what exactly the aim of this march is, please?

You say you are marching against the Human Fertilisation and Embryology Bill, but what I would like to know is … are you against the WHOLE bill or just part of it?I ask this because the Bill is very broad, and has some good things in it too.

For example, it covers gay people’s parenting rights. Like, it says that lesbians can bring up children on their own without men involved. It also says that non-birth mothers in lesbian relationships can put their names on their children’s birth certificate, and other things like that.

These things are good. So if you are against the WHOLE Bill, I am not getting involved!

Please clarify your aim? Thank you!

Posted in Uncategorized | 4 Comments »